This post could have been written many weeks ago, but I have not been able to get my head wrapped around it. I have gone through emotions ranging from disbelief, shock, guilt, optimism and then shock all over again. I was hesitant to share the news if it was untrue. But there have been enough people involved in this process that I think it okay to make it public. Ben can read . I mean really read - sight words, sentences and short paragraphs. We have not tested further than that yet, but I am certainly determined to see just how much he knows. It started again with the NOVA Chat (I swear I am not a paid endorser) and testing Ben on sight words. It appeared that he knew them all, even when I added ones that I used with Sean. The speech and occupational therapists asked Ben questions based on books and videos. A couple of times, he answered without anyone reading the question to him. A fluke, right? It happens a few times and you say, "What the hay, let's give him a sente
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.