First in Families is a statewide organization that does a number of wonderful things for people with special needs. Here are a few I borrowed from their website: Helps people with developmental disabilities and their families to create the lives they want now and for the future. (Visit Lifetime Connections ) Provides guidance and oversight to local First In Families Chapters. (Find a local FIF Chapter ) Nurtures the growth of new FIF Chapters. Assists in developing statewide policy for implementing self-directed supports for people with disabilities. (Visit Advocacy ) Our family applied for help from First in Families when Ben needed a computer that would run pre-literacy programs and activate his touch screen. Ben received the funds to buy the computer. If you have the hankering for some flapjacks, consider attending this fund raiser. Feel free to share this with others. It would be great to eat Applebee's out of pancakes!
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.