Last year when we were just observers of Sled Hockey , I wrote about how amazing these athletes were - both in skill and their ability to overcome whatever physical challenges faced them. I brought Ryan along this year and he was astounded by what he saw. He went into the experience with doubts about the sport and quality of the athletes, but after a few minutes realized that his misconceptions were based on bad assumptions. I'd say he did not believe me when I came back last year so excited! Ben had the opportunity this year to get on one of the sleds and slide around with the Big Dogs. Ben is pictured here with one of the US Paralympic Sled Hockey team members. Ryan made sure this photo happened. Next year, he plans to stage a photo with the whole team surrounding Ben in the goal. Ben spent a lot of time trying to get the helmet off and his fingers were cold after a few tours around the ice. If he hated it, he would have let us know - so I will assume he enjoy
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.