Ryan and I spent two nights away a few weekends ago – without the boys. We had not done that in two years, and even then, I was 7 months pregnant, so technically we were not alone. We were giddy like school girls (to steal a saying from Ryan), so giddy that we got lost on interstate 77 for at least an hour (that’s what we are willing to admit.) We were headed for Ohio and almost made it to SC. In our defense, we were talking and laughing and relishing in the fact that no one was seated behind us in the minivan. One thing that we discussed was how calm and at ease we were with each other, so calm we never paid attention to which direction we needed to go when we left the gas station. We were together for nine years before we ever had children – so we had a lot of time alone, and I know we never stopped to appreciate it. Nor could we have. When I see couples who are about to have a baby, I want to say, “Go out, spend time alone with each other. It will be years before you will have
These stories describe our journey with Ben, our oldest son. Ben is a sweet and energetic redhead, born with Rett Syndrome, a rare genetic mutation. My husband, Ryan, and I try to keep up with Ben and his two younger brothers. I intend to shed insight into raising a child with disabilities and pass on the wisdom we’ve earned over the past two decades.